Crisis, what Crisis?

Apologies it's been such a long time since my last post, but I haven't been in good enough shape to turn on the PC.  However, all is now resolving.

The aforementioned back pain that you were all so sympathetic about in your comments moved around all over my body, changing its nature and making it difficult, no impossible, to move around without considerable discomfort in various places.  Then other more obvious symptoms of Graft versus Host Disease (GvHD), eg itchy body rash, made it clear that that was the underlying cause and it needed bringing under control prontissimo.  Cue a course of high dose steroids, and insertion of a cannula so that my drugs could be administered intravenously again instead of orally because I'd been bringing them back up again too frequently, which rather reduces their efficacy, as you can imagine.

The medical team was very efficient and decisive and Julia too has made sure that not only does she continue to come every single day (and for most of the day too regardless of her own tiredness, work crises etc) but also to ensure that she is always here for the important medical consultations, because I have been drifting about in my own little world for the last few days.  Three million cheers for Julia: RaaaaaaaaaaaY!!!

The upshot of all this is that I feel much better now, though very Feak and Weeble, my temp is normal and they're starting to wean me back onto oral drugs rather than IV, with the intention of throwing me back out onto the street by the end of the week.  I have to say I've given up on targets myself.  It's enough that I am where I am, I've been where I've been and let the future take care of itself.  So much easier to live like that.  It'll come when it's ready.

However, other very good news is that all the results of the Bone Marrow Test that I had ten days ago are now back and show that 95-98% of all my blood cells are donor cells (the benchmark they are looking for is 90% plus), so engraftment has definitely been successful, and there is zero sign of any CLL.  Still early days, but everything there looks positive.

Finally had visits from brother Andrew, sister Sally and son Ben, all very supportive and frequently emotional which felt very cathartic, restorative and healing.